Monday, September 25, 2017

P.E.M. Spoonies




For those with Post Exertion Malaise, P.E.M., we can find ourselves wondering just how many days worth of energy spoons we used up that day. Because of the delayed reaction that can take place with P.E.M. we really can rob from tomorrow, even from next week.

Just last night I sat in bed wondering how many days worth of spoons I had used up that day. Suddenly it hit me as a rather humourous thought. Spoonies- people who think of their daily energy allotment in terms of spoonfuls- usually think only on terms of that days spoons. I thought about why I thought in the longer view and then P.E.M. came to mind. Those of us with the mitochondrial disfunction that causes the problem can't think in terms of a simple day's worth of energy. We can have a "full cup" of energy day, not knowing how long it will take to refill that cup again.


It is much easier to deal with restricted daily energy if that allotment is relatively dependable. With P.E.M. the only reliable thing is how unreliable our bodies and energy levels are.